Translate

Tuesday, July 5, 2016

7) Timeline: Early days of dosing schedule and notable events

To lay out the trials and errors and timeline of our experiment, here it is:

February 28, 2016
Consulted with Dr. Friedman about getting an order of oxytocin.

May 14, 2016
Started his first dose (10 unit sublingual pill)

May 16, 2016
Increased dose to 10 unit pill BID (twice per day)

During this time, we noticed no therapeutic benefit from the oxytocin.  It was surmised that it was ineffective due to the method of administration so I requested Dr. Friedman to order the intranasal spray.

June 4, 2016
Began 6 iu spray

June 6, 2016
Increased dose to 6 iu in each nostril (12 iu total per day)

June 9, 2016
Two teachers gave independent feedback that his behaviors were worsening with increased defiance and insistence on eating.  Both teachers stated that the worsening behaviors were happening for the last 4 weeks.  We noticed increased food seeking episodes and meltdowns at home.

June 12, 2016
Began intermittent spacing of 6 iu every three days

June 20, 2016
Sasha began to leave food unfinished on his plate and brought home unfinished food from lunch.  He later told me that during this week, he had desires to "hang out" with other kids during lunch.

June 24, 2016
HEFY (Half-Eaten Frozen Yogurt) happened!  On this day, he received his 6 iu dose and was able to leave food unfinished for every meal, including dessert.  For the two days following HEFY, Sasha asked for unusual desserts (once it was baby carrots and another time it was peanuts).

July 4, 2016
Sasha did not ask for a snack in the late morning when he saw and heard his sister asking for a snack.  This was the first time he neglected to obtain a snack when he was exposed to a food cue.
In the late afternoon, we attended a BBQ and he did not park himself permanently in front of the food table for the entire afternoon and evening.  He was able to engage in conversations with others, play in the pool, and eat more moderately.

I will continue to update the timeline, as needed.

4 comments:

  1. Are you monitoring his weight? Curious to know about weight changes. -jc

    ReplyDelete
    Replies
    1. Yes, I am monitoring his weight. So far, his weight is fluctuating slightly (up and down) but he hasn't lost any weight- he is about the same as he was when he started oxytocin. It may change with more time- therapeutic effect has been going on only for a couple of weeks.

      Delete
  2. Why did it take so long for him to start the oxytocin after seeing Dr. Friedman? I have a consult with him 8/2. Super excited!

    ReplyDelete
    Replies
    1. Good question. I forgot to mention this. Dr. Friedman ordered a test to check his oxytocin levels. It's took a little while for it to arrive in the mail and after taking the test, it took a little while for the results to arrive. Then we had to get his other hormones balanced optimally, and then we had to wait till we got back from England! It probably won't take you so long to get going!

      Delete