Yesterday we attended the 5th Annual Craniopharyngioma Picnic. We had a wonderful time meeting up with all the cranio survivors (14 in total who made it into a group photo) and their family members. As predicted, it was very hard for Sasha to handle himself around the desserts and there was some drama that developed between HO Monster (HOM) and Kitchen Bitch (KB). KB refused to allow HOM to have a cookie or any other sweets for fear of the escalating addiction cycle and HOM was NOT happy about this. As KB was standing down the HOM, things were getting ugly but luckily Sasha's dad came to the rescue just in time. We play "good cop, bad cop" and sometimes this works to help Sasha calm down and to listen to reason. Fortunately, it worked and he was able to enjoy the rest of the picnic without allowing HOM to rear its ugly head. Sasha ended up distracting himself by playing games at the arcade and eating very little/lightly for the remainder of the picnic. I am convinced that his ability to distract himself from eating would not have happened if the KB did not intervene with stopping HOM from eating the cookie. As unpleasant as it was while it lasted, it was a necessary intervention and one that Sasha even thanked me for at the end of the picnic.
In reading more on hyperinsulinemia and insulin resistance, I am now wondering if they are almost synonymous with sugar addiction? If not the same phenomenon, at least, they are highly interrelated. The symptoms of hyperinsulinemia also very closely resemble many of the symptoms of Hypothalamic Obesity.
Here are two excellent and very readable articles on the topic:
http://www.diabetes.co.uk/hyperinsulinemia.html
http://www.holistichelp.net/insulin-resistance-symptoms.html
Hello my name is Diana, I live in Bogota Colombia. My 13 year old son was operated craniopharyngioma 10 years ago. he has to take vasopressin, thyroxine, cortisol and growth hormone.
ReplyDeleteWe have had events with respect to food, and we have replaced sugar with stevia. He has given us the result but also eats in secret.
Yes, many of them eat in secret! It is sad but true that they often can't feel full and worry about not getting enough to eat even when there is enough.
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