Monday, May 4, 2020

128) Good news for HO sufferers: promising results from a new drug, Tesomet

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Saniona is a Danish-based pharmaceutical company which has recently issued a press release about some exciting news for HO sufferers: the re...
7 comments:
Friday, January 31, 2020

127) Long overdue update on Sasha and updates on literature and providers

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It's been a long while since I've updated the blog or made an update about Sasha.  In short, he is doing well.  To date, Sasha has b...
3 comments:
Friday, October 25, 2019

126) Good news continues for Sasha and others with HO and hyperphagia

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I continue to hold hope for those who suffer from hypothalamic obesity and hyperphagia.  As you may recall, before my son started oxytocin ...
Monday, July 8, 2019

125) New Hope for HO- mast cell activation and antihistamines

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We, the parents of kids with rare diseases, become default experts of their medical conditions in order to find answers where the medical p...
3 comments:
Tuesday, July 2, 2019

124) Happy 3rd Anniversary, Hope for HO!

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Today marks three years since I started this blog. I did not know what would become of our experimental treatment with oxytocin at the time ...
3 comments:
Friday, April 26, 2019

123) Pediatric pituitary tumor conference notes + Sasha update

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On March 16, 2019, Children’s Hospital of Philadelphia held a one-day conference for families affected by pediatric pituitary brain tumors. ...
3 comments:
Monday, March 4, 2019

122) Sasha update & oxytocin questions to ask at the CHOP conference

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Quick update since I haven't posted anything about Sasha in Hope for HO for several months.  In my last post about him (October 24, 2018...
1 comment: